Caregiver Burden Trajectories for Post-Stroke Patients after Discharged Over Six Months
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Abstract
Background and Objectievs: Caregiver burden trajectories (CBT) of stroke patients are controversial due to previous studies having hypotheses and using statistical analysis to identify only one trajectory. However, both patients’ and caregivers’ characteristics are associated with burden. This study explored the number and shape of CBT after stroke patients’ discharge over six months and its characteristics.
Design: Prospective Observational Cohort .
Methods: A study was conducted on 100 pairs of caregivers and stroke patients with repeated measurement of Zarit Burden Interview (ZBI) scores over six months. The CBT was analyzed using the Group- Based Trajectory Model (GBTM). The patients’ and caregivers’ characteristics were analyzed by Multinomial logistic regression, showing the ratio of relative risk and 95% confidence interval. (95%CI)
Results: The study found three trajectories identified into persistent low (n=16), decreasing (n=56), and prolonged (n=28) CBT. The patients’ and caregivers’ characteristics that are associated with a prolonged CBT are caregiver age (41-64 years) (RRR = 0.07, 95%CI: 0.01, 0.82), no instrumental support (RRR = 0.13, 95%CI: 0.02, 0.88) and having anxiety symptoms in stroke patients (RRR = 12.79, 95%CI: 1.11, 146.79).
Conclusions: There is more than one CBT of stroke patients after discharge. Assessing and monitoring the level of caregiver burden in all stroke patients after discharge is crucial for family doctors and home visit teams. Developing a health care system for caregivers, especially caregivers taking care of stroke patients with anxiety symptoms, and the risk of having prolonged CBT.
Keywords: are giver trajectory, stroke, group-based trajectory model
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