Attitudes and Caregivers’ Needs in Palliative Care Cancer Patients in Phramongkutklao Hospital
Main Article Content
Abstract
Abstract
Objective The study aimed to explore the attitudes and needs toward being a caregiver for palliative care of patients with cancer.
Design The study employed a concurrent mixed method design.
Materials and Methods Data were collected from 25 caregivers of patients with cancer using semi-
structured interviews from March to May 2019. Three aspects were explored: (1) attitude of caregivers in palliative care of patients with cancer, (2) problems and needs in palliative care of patients with cancer and (3) problem solving of caregivers. Data were gathered until saturation was reached then coded and analyzed. The problems and needs in palliative care by caregivers were analyzed using bivariate analysis. The results of problems and resolutions were analyzed, coded and interpreted using qualitative analytic techniques to arrive at several common overarching themes.
Results Mean age of caregivers was 52.45 years. An average caregiving role was 3.45 years and more than one half spent giving care >12 hours daily. From interviews, variable problems were identified; the most common problems being fear regarding the future, distressing symptoms, pain and emotional problems. Moreover, the problem solving of caregivers involved themselves and others, knowledge, attitude, activities, assistance and psychological support.
Conclusion The care of patients with cancer presents a series of problems for caregivers many of which remain undetected. Additionally, the problem solving of caregivers involved themselves and others, resilience, coping, knowledge, attitude, activities, assistance and psychological support.
Keywords: palliative, caregivers, needs, problems
Article Details
The content and information in articles published in the PCFM journal are solely the opinions and responsibilities of the authors. The journal's editorial board does not necessarily agree with or share any responsibility for them.
All articles, information, content, images, etc., published in the PCFM journal are the copyright of the PCFM journal. If any individual or organization wishes to reproduce, distribute, or use any part or the entirety of the content, they must obtain written permission from the PCFM journal beforehand.
References
1. World Health Organization. (2018), available from: http://www.who.int/cancer/en/
2.National Cancer Control Programmes 2556-2560. Available from:http://www.nci.go.th/
3.World Health Organization. (2002), available from: http://www.who.int/cancer/en/
4.Kuyper MB. On the background: a study of the problems of spouses of patients with chronic disease [Op de achtergrond, Een onderzoek naar de problemen van partners van patie¨nten met een chronische ziekte] [dissertation of the University Nijmegen, the Netherlands]. Amsterdam: Thesis Publishers; 1993.
5. Proot IM, Huijer Abu-Saad H, ter Meulen RHJ, Goldsteen M, Spreeuwenberg C, Widdershoven G. The needs of terminally ill patients at home: directing one’s life, health and things related to beloved others. Palliat Med. 2004;18(1):53Y61.
6. Sepulveda C, Marlin A, Yoshida T, Ullrich A. Palliative care: the World Health Organization’s global perspective. J Pain Symptom Manage. 2002; 24(2):91Y96.
7. Knodel J, Teerawichitchainan B, Prachuabmoh V, Pothisiri W. The Situation of Thailand’s Older Population : An update based on the 2014 Survey of Older Persons in Thailand. HelpAge International; 2015.
8. Foundation of Thai Gerontology Research and Development Institute (TGRI). Situation of the Thai elderly 2015. Bangkok: Amarin printing and publishing; 2016.
9. Schulz R, Beach SR. Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. JAMA 1999; 282:2215-9.
10. Sihapark S, Chuengsatiansup K, Tengrang K. The effect and caregiving burdens of older persons in long-term care based on Thai culture. Health systems research institute. 2013.
11. Suphasiri Chiangta, Wallada Chanruangvanich , Orapan Thosingha, Phawin Keskool . Relationship between Head & Neck Cancer Patients and Their Caregivers in Terms of Palliative Care Needs . Thai Journal of nursing council. 2560
12. Proot IM, Abu-Saad HH, ter Meulen RH, Goldsteen M, Spreeuwenberg C, Widdershoven GA. The needs of terminally ill patients at home: Directing one’s life, health and things related to beloved others. Palliative Medicine 2004; 18: 53–61.
13. Hanks GW, Conno F, Cherny N et al. Morphine and alternative opioids in cancer pain: The EAPC recommendations. The British Journal of Cancer 2001; 84: 587–593.
14. Mystakidou K, Befon S, Kouskouni E et al. From codeine to transdermal fentanyl for cancer pain control: A safety and efficacy clinical trial. Anticancer Research 2001; 21: 2225–2230.
15. Mystakidou K, Parpa E, Tsilika E et al. Pain management of cancer patients with transdermal fentanyl: A study of 1828 step I, II, & III transfers. Journal of Pain 2004; 5: 119–132.
16. Addington-Hall JM, MacDonald LD, Anderson HR et al. Randomised controlled trial of effects of coordinating care for terminally ill cancer patients. BMJ (Clinical Research Ed.) 1992; 28: 1317–1322.
17. Wiggers JH, Donovan KO, Redman S, Sanson-Fisher RW. Cancer patient satisfaction with care. Cancer 1990; 66: 610–616.
18. Maguire P, Walsh S, Jeacock J, Kingston R. Physical and psychosocial needs of patients dying from colo-rectal cancer. Palliative Medicine 1999; 13: 45–50.
19. Miller K, Massie MJ. Depression and anxiety. Cancer Journal 2006; 12: 388–397.
20. Osse BH, Vernooij-Dassen MJ, Schadé E, Grol RP. Problems experienced by the informal caregivers of cancer patients and their needs for support. Cancer Nursing 2006; 29: 378–388.
21. Cohen SR, Mount BM, Strobel MG, Bui F. The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliative Medicine 1995; 9: 207–219.
22. Connell CM, Gibson GO. Racial, ethnic, and cultural differences in dementia caregiving: review and analysis. Gerontologist 1997; 37(3): 355-364.
23. Beach SR, Schulz R, Yee JL, Jackson S. Negative and positive health effects of caring for a disabled spouse:longitudinal findings from the Caregiver Health Effects Study. Psychol Aging 2000; 15(2): 259-271.
24. Schulz R, Newsom J, Mittelmark M, Burton L, Hirsch C, Jackson S. Health effects of caregiving: the caregiver health effects study: an ancillary study of the Cardiovascular Health Study. Ann Behav Med 1997; 19(2): 110-116.
25. Schulz R, Beach SA. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA 1999;282(23): 2215-2219.
26. Covinsky KE, Goldman L, Cook EF, Oye R, Desbiens N, Reding D, et al. The impact of serious illness on patients' families. JAMA 1994; 272(23): 1839-1844.
27. Maguire P, Walsh S, Jeacock J, Kingston R. Physical and psychosocial needs of patients dying from colo-rectal cancer. Palliat Med. 1999,13(1):45Y50.
28. Hinton J. Can home care maintain an acceptable quality of life for patients with terminal cancer and their relatives? Palliat Med. 1994;8:183Y196.
29. Norman G. Hi! How are you? Response shift, implicit theories and differing epistemologies. Qual Life Res. 2003;12(3):239Y249.
30. Vess JD, Moreland JR, Schwebel AI, Kraut E. Psychosocial needs of cancer patients: learning from patients and their spouses. J Psychosoc Oncol. 1988;6:31Y51.